an update on the ruderto
yo dudes -
for those in the know, rudy is gracing (and boldly!) ucsf hospital with his presence and they already adore him. on monday, he was diagnosed with aplastic anemia, an extremely rare (1000 american folks/year) blood disorder in which the immune system attacks the blood marrow, resulting in the marrow's diminished ability to produce platelids, red b cells and white b cells.
he's been in the hospital for 4 days, set to be here for 3-4 weeks more. his initial (and hopefully only) chemotherapy treatment begins tomorrow, a combo of 2 immunosuppressant drugs. the extended plan is as follows, if necessary:
1 month: in hospital chemo
3 months: at home. at the end of the 3 months, they will check to see if the chemo worked. if not....
1 month: in hospital chemo, 2nd round
3 months: wait and see again. if not, a blood marrow transplant is the next option
things are looking up though. his blood counts have remained the same since he arrived at ucsf and he is in extremely fantastic spirits. he's had a TON of visitors: people 'round here really love him a lot.
thanks to amanda, steph and e-ray for putting up with rambling messages and helping me think through how to play Mom out here. i've been asking a lot of questions to the physicians, and my oh my, the hemotologists here have been all too willing to answer any question that i've had. and i'm making sure rudy's following all of his new rules too. haha - i am so maternal. who knew?
more soon but my world has sort of been all rudy and co. for the past week or so.
love you kids a lot. stay healthy please and talk with you soon...
jen
for those in the know, rudy is gracing (and boldly!) ucsf hospital with his presence and they already adore him. on monday, he was diagnosed with aplastic anemia, an extremely rare (1000 american folks/year) blood disorder in which the immune system attacks the blood marrow, resulting in the marrow's diminished ability to produce platelids, red b cells and white b cells.
he's been in the hospital for 4 days, set to be here for 3-4 weeks more. his initial (and hopefully only) chemotherapy treatment begins tomorrow, a combo of 2 immunosuppressant drugs. the extended plan is as follows, if necessary:
1 month: in hospital chemo
3 months: at home. at the end of the 3 months, they will check to see if the chemo worked. if not....
1 month: in hospital chemo, 2nd round
3 months: wait and see again. if not, a blood marrow transplant is the next option
things are looking up though. his blood counts have remained the same since he arrived at ucsf and he is in extremely fantastic spirits. he's had a TON of visitors: people 'round here really love him a lot.
thanks to amanda, steph and e-ray for putting up with rambling messages and helping me think through how to play Mom out here. i've been asking a lot of questions to the physicians, and my oh my, the hemotologists here have been all too willing to answer any question that i've had. and i'm making sure rudy's following all of his new rules too. haha - i am so maternal. who knew?
more soon but my world has sort of been all rudy and co. for the past week or so.
love you kids a lot. stay healthy please and talk with you soon...
jen
posted by jasembera at
7:14 PM
2 Comments:
hello. that scheduled phone time you mentioned - might you be able to do it tomorrow (Sat) afternoon/eveninish? i would love to have a good talk.
im going to get on special doctors-only websites and send you what i find on aplastic anemia (i.e. more blunt and truthful and technical than layperson websites). Look for that in email soon please?
i love you. and your messages.
By
Diane, at 6:35 AM
so glad hes got you there
By
Anonymous, at 9:10 PM
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